A two-year old Granbury boy suffering from Duchenne muscular dystrophy has led Granbury Pirate football coaches to join the nationwide college football initiative Coach to Cure MD. The cause will be featured during the Granbury-Fort Worth South Hills game on Friday, September 28, 2012.
Jax Madrigal will be in attendance at the game with his grandfather, Steve Grossman, who spread headed the initiative.
Duchenne is the most common fatal genetic disorder diagnosed during early childhood. A progressive muscle disorder that causes loss of muscle function and independence, Duchenne affects approximately one out of every 3,500 boys and 20,000 babies born each year worldwide. The disorder manifests primarily in boys because the affected gene is found on the X-chromosome. It knows no other boundaries, touching all races and cultures.
There are approximately 15,000 young men with Duchenne alive today in the United States, according to Parent Project Muscular Dystrophy (PPMD). The disorder can occur during any pregnancy regardless of family history. To date, there is no cure or treatment to stop the progression, and young men with Duchenne typically live only into their twenties.
Granbury High School coaches will be wearing lime green wristbands and patches on their sleeves to support the program, which is in its fourth year promoted by the American Football Coaches Association. College coaches will be showing their support during games on Saturday, September 29.
Also planned is a public service announcement video to be broadcast over the new scoreboard video screen during pre-game activities.
“Because the disease affects so many young boys, it makes sense for . . . coaches to step in and make a difference,” stated AFCA executive director Grant Teaff, who previously coached at Baylor University. “We are proud to see so much support on the sidelines every September, from coast to coast at every level of play.”
Individuals interested in donating can text CURE to 90999 to make a $5 contribution billed to their mobile phone. Proceeds benefit the PPMD non-profit organization that was founded in 1994 to fund research and end Duchenne. For more information, go to www.coachtocuremd.com.